Huntington’s Awareness Training

This training program’s objective is to teach learners a deeper understanding of Huntington’s disease and safe and efficient caring strategies for people who are impacted by it. The terms “Huntington’s Awareness” describe initiatives and programs designed to raise awareness of the disease and foster a greater understanding of it. Participants in this class will gain knowledge on Huntington’s disease, including how it affects them personally, what symptoms to watch for, and how to offer assistance. The goal is to improve understanding and compassion to help those coping with the difficulties associated with Huntington’s disease.

• Course Duration: 2- 3 hours
• Course Level: Level 2
• Certificate: 1-year certificate
• Max Delegates: 12
• Practical: Yes
• Mode: Face-to-Face/Blended

Course Outline

Examine what is Huntington’s Disease Huntington’s Disease affects the brain, causing movement problems and changes in thinking and feelings. It’s passed down in families through a gene. So we will provide an introduce on Huntington’s disease to help you understand in this section.

• Definition and brief history of HD
• Prevalence and incidence rates
• Typical age of onset and duration

Discuss Gene and Huntington Disease Genes are like body instructions. In Huntington’s Disease, a gene doesn’t work right, causing the brain to act differently and leading to the disease. We will discuss more about gene and Huntington disease in this section.

• Caused by mutation in HTT gene
• Autosomal dominant inheritance
• 50% chance of inheriting mutated gene from affected parent
• Reduced penetration and variable expression

Review Signs and Symptoms of Huntington’s Disease What are the main signs to watch out for? Signs include uncontrolled movements, coordination troubles, and behavior changes. Catching these signs early is important for diagnosis.

• Main symptoms (movement, cognitive, psychiatric)
• Changes in mobility, cognition, emotions and behaviour
• Progression over time

Consider Diagnosis & Treatment A gene test diagnoses Huntington’s Disease. While there’s no cure, treatments help manage symptoms and make life better for those with the disease. This part of the HD Training focuses on that.

• Genetic testing for HTT mutation
• Presymptomatic vs diagnostic testing
• Lack of cure or disease-modifying treatments
• Medications and therapies for symptom management

Examine living with Huntington’s Disease & caring for someone with Huntington’s Disease Daily life with Huntington’s Disease can be tough. Caregivers are crucial, helping with daily tasks and understanding the challenges.

• Effects on daily life for those with HD
• Challenges of being an HD carer
• Support options for families

Discuss Person Centred Care Tailoring support to each person’s needs and preferences is essential in Huntington’s Disease care. It’s about being understanding and effective.

• Focusing on the person behind the disease
• Respecting values, preferences, needs and choices
• Seeing strengths and preserving dignity

Discuss End of Life Care In the final stages, care focuses on comfort, emotions, and dignity. It’s about providing kindness and support as the disease progresses.

• Palliative care and hospice options
• Advanced directives and care planning
• Providing comfort and support at end of life

Learning Outcomes

Upon successful completion of this Huntington’s disease training, participants will be able to:

1. State what is Huntington’s Disease
2. Describe Gene and Huntington Disease
3. Identify Signs and Symptoms of Huntington’s Disease
4. Analyse Diagnosis & Treatment
5. Explain living with Huntington’s Disease & caring for someone with Huntington’s Disease
6. Describe Person Centred Care
7. Describe End of Life Care

Who should attend Huntington’s Disease Awareness training:

Anyone involved in caregiving, healthcare, or support roles should attend Huntington’s Disease Awareness training. This includes:

• healthcare professionals,
• caregivers,
• family members, and
• individuals who may encounter or assist those affected by Huntington’s Disease.

Benefits of Huntington’s Awareness Training:

The training gives attendees essential knowledge to understand the disease, recognise its signs, and provide compassionate care.

• Good Understanding: Gain a good knowledge of Huntington’s Disease, its symptoms, and the challenges faced by individuals affected.
• Improved Care Skills: Get practical skills to provide better care and support to those living with Huntington’s Disease.
• Foster empathy and compassion, enhancing your ability to connect with and support individuals dealing with the disease.
• Confidence in Caregiving: Build confidence in your caregiving role by learning effective strategies and approaches tailored to the unique needs of Huntington’s patients.
• Support Families: Assist and comfort family members.
• Community Help: Contribute to your community’s understanding.
• Career Boost: Open doors to new healthcare opportunities.
• Personal Reward: Feel good by making a positive impact.